Support Groups

Charge Family Support Group: Home | Charge Family Support Group (chargesyndrome.org.uk)

Deafblind UK:  Deafblind UK | Supporting Deafblindness in the UK

Sense (deafblind): Sense | For people with complex disabilities

Victa (sight loss) VICTA | Children and young adults who are blind or partially sighted

Royal national institute for the Blind (sight loss)

Royal National Institue for the Deaf (Deafness) RNID – National hearing loss charity

National deaf Children’s Society (Hearing loss): National Deaf Children’s Society | Supporting deaf children (ndcs.org.uk)

MACS (Sight loss)  MACS – Microphthalmia, Anophthalmia and Coloboma Support – Supporting children born without eyes or with underdeveloped eyes

Contact (Contact a Family provides support and advice to parents whatever the medical condition of their child)   Contact: the charity for families with disabled children

Usher Kids:  Usher Kids UK

Usher Syndrome Help: Support for people with Usher syndrome – Deafblind UK